I suspect we will see more and more options to customize medical care and health efforts based on our DNA and other medical data, and we should carefully consider the potential privacy implications of these efforts, especially when they occur outside of the sanctity of a doctor’s office and are driven by a company who may have interests beyond our health. As I like to prompt my students to think about, what is the value of this information – to me and to others? And, given that value, who can/should I share it with?
DNA from direct-to-consumer kits can help you find your ancestors–and potentially help law enforcement find you. See how genetic data raises privacy concerns even as it restores justice.
Many of us have probably seen news articles raising privacy concerns regarding home DNA test kits, but now evidence indicates that choosing to take one of these at-home DNA tests may have privacy implications for not only you, but also your family members.